This is the first entry that I'm not copying. I have more that I have previously wrote, but this is on my mind now.
What kind of ataxia do I have? I am so tired of being poked and proded by Doctors! Having people take my blood is like second nature to me. It is all I have known for years. I am currently waiting on results from my neurologist for Fredriechs Ataxia. It is a genetic ataxia in which both of my parents have to carry the gene for. A LOT of it's symptoms and things are me. It doesn't show symptoms until about the age of 15, like me. It causes heart problems, like me. Most people end up in a wheelchair early on, and although I am fighting it, it looks like I could be heading in that direction.
I could have it worse. I could be paralyzed, or fighting cancer,or something to that affect. I try to focus on the point that I am lucky being that I have none of those. I can't help thinking of how active I used to be, and how pretty heels would be on me, and how everytime I have to wear a dress, I have to find flats to go with it. Has anyone ever noticed how they make heels so cute, but finding a cute pair of flat, dressy, shoes is near impossible? This is a reason I wear flip flops all the time as soon as it starts to warm. I feel like they make my outfit cuter, rather than tennis shoes.
I have just been babbling. I might write more later. Everyone have a good day!
I don't know what kind of Ataxia I have. They say it is Spinocerebellar Ataxia. Been dealing with it since 16 at least that is when I noticed it.
ReplyDeleteI am so jealous that you can wear flip flops, I have never been able to wear them! And yes cute flats are impossible to find thats why I don't wear dresses or skirts.
I trip a lot and have many scars from falls in flip flops, and my parents yell at me for wearing them. lol.
ReplyDeleteI have always been sort of a girly girl, so although I love jeans and hoodies and t-shirts, I like to dress up too... so when I have an opportunity (my good friend's wedding is coming up) I want to wear a dress or skirt!
Chelsea, you could come to my wedding in your PJs and I wouldn't care, I just want you there. Don't worry about what other people say about you or to you. I know it's hard at times, but just remember you are an amazing person and I can't picture my life without you being my friend!
ReplyDeleteI love you!! <3
I have tears in my eyes! I love you too Rhonda <3 Having great people like you in my life is a lot of what gets me through every day!
ReplyDeleteChelsea... coming from an old broad like myself, heels are highly over-rated! Most of them are uncomfortable and if you wear them for too many year of your life, you will end up with big calves (lol). So, definitely go for the comfortable shoes, and don't worry how they look. Not everyone is looking at your feet ;)
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