Sunday, April 25, 2010

Friedreich's ataxia is an inherited disease that damages your nervous system. The damage affects your spinal cord and the nerves that control muscle movement in your arms and legs. Symptoms usually begin between the ages of 5 and 15. The main symptom is ataxia, which means trouble coordinating movements. Specific symptoms include

Difficulty walking
Muscle weakness
Speech problems
Involuntary eye movements
Scoliosis
Heart palpitations

People with Friedreich's ataxia usually need a wheelchair 15 to 20 years after symptoms first appear. In severe cases, people become incapacitated. There is no cure.

Friday, April 23, 2010

Lottery

Well, I found out why I was so sick! While my allergies were bad, I had been off one of my pills for a few weeks and my body was so used to it that it was making me dizzy, nauseous, tired all the time, headches... Now I am back on it and feel sooooo much better. Which means, I feel good enough to start trying to get motivated to work my butt off. I'd like to lose maybe 10-15 lbs. and tone up my tummy and legs (While my arms are tiny, I look pregnant and my thighs have gotten real big). Plus, my diagnosis came back from Ohio State and I do have Friedreich's Ataxia (FA). My neurologist said that even though I cannot get back what I have lost, I can help slow down the process by staying active. As with everything else, it's hard to do without money. I would LOVE to join a gym.... prefferably one with a pool because I feel that my aquatic therapy has been the most beneficial for me.
I decided that since nothing much has been going on to write about, I can write about FA and what it causes and how I have noticed things with me.
Haha, I told Dad I should play the lottery. My neurologist said that I had a 1 in 40,000 chance of getting FA, and I did. Then she said I had a 25% chance of it being full blown and getting most of the symptoms, and I did. So, I guess I have a good chance of winning the lottery if I won the FA titles. lol
Speaking of lottery, did anyone see the guy who won the Powerball Lotto? He had $27 in his pocket. It's people like that who deserve to win, and I couldn't be happier for him!!

Tuesday, April 20, 2010

Sick

So... like 3 weeks ago today I started getting dizzy. It progressively got worse and it is to the point that I can't turn my head without getting nauseous or wanting to fall over. I thought it was a sinus infection, and my doctor perscribed me a Z-pack (antibiotic) to get rid of it, but it either didnt work or something else is wrong with me.
It makes me wonder: If I can stay up and not fall (well, sometimes...) when I feel like this, then why can't I walk normal when I feel good?
Anyway, today is pretty bad. I'm getting sick and a headache from typing. I'll write more soon.